Baby Corbin, infant born with rare condition, continues to inspire
NEW BERLIN – Corbin Alfred McHenry was born April 4, 2013 weighing four pounds, four ounces and was 17 inches long. While pregnant, Kara McHenry - a 2010 Unadilla Valley Cental School graduate - learned that her son had a chromosomal condition known as Trisomy 13. Baby Corbin had to be delivered via emergency cesarian section eight weeks prior to his due date, and was given a one percent chance to be born breathing. The doctors had notified Baby Corbin’s parents - Shane and Kara McHenry - that if he was born alive, they would have very few moments with him, as he had many severe medical issues.
Today - May 27 - defying all odds, Baby Corbin is now 53 days old.
Deborah Collins-Barker, Corbin’s maternal grandmother, stated he does have medical obstacles but he is overcoming them one at a time.
Trisomy 13 is the presence of an extra thirteenth chromosome and individuals born with this condition often have heart defects, brain or spinal cord abnormalities, issues with eye development, and weak muscle tone. This condition occurs in approximately one in every 16,000 newborns.
Once the McHenry’s learned Baby Corbin had Trisomy 13, they searched around for the best hospital and care available. They decided to move from their home in North Carolina to Pennsylvania so both Kara and Corbin would be in the best hands possible - at the Children’s Hospital of Philadelphia (CHOP). Not only was Baby Corbin born breathing, he continued to do so on his own for the first hour of his life, and doctors were stunned.
Not only did Baby Corbin make it through the first hours, he has continued to be a strong, perseverant child for over fifty days. People from the community and across the globe have caught wind of Baby Corbin’s story and are sending support on a daily basis. According to Collins-Barker, individuals and families from countries including Ireland, Tokyo, Australia, Argentina, Canada and Japan are following the life and love of Baby Corbin.
A Facebook page has been set up titled “Team Corbin,” where more than 5,800 people are following Baby Corbin’s progress. A video showcasing his first month was recently posted to the page, and supporters can track his progress through the daily updates the page provides.
Team Corbin wristbands have been created, and are available for purchase for $4 each. The front of the wristband reads, “Team Corbin,” and the back reads, “You got this,” - a phrase that has been used throughout Baby Corbin’s journey. Tumblers are also available for purchase and are $15 each, or $10 if the buyer will pick up locally in New Berlin, South New Berlin, Sherburne or Norwich. Payments can be made for both the wristbands and tumblers via Paypal or credit card. More details about purchasing items to support Baby Corbin can be found on the Team Corbin Facebook page.
The McHenry’s have recently been informed Baby Corbin will be transferred to ECU Greenville in North Carolina, just a short drive from their new home. Shane, Baby Corbin’s father, is a Marine stationed at Cherry Point, N.C. Baby Corbin is stable enough now to be cared for at ECU Greenville until he is able to be discharged home.
“Corbin has been an inspiration,” said Collins-Barker. “A perfect little boy to have been chosen to help spread awareness.”
To learn more about Baby Corbin’s journey thus far and to continue to track his progress visit facebook.com/teambabycorbin.
Today - May 27 - defying all odds, Baby Corbin is now 53 days old.
Deborah Collins-Barker, Corbin’s maternal grandmother, stated he does have medical obstacles but he is overcoming them one at a time.
Trisomy 13 is the presence of an extra thirteenth chromosome and individuals born with this condition often have heart defects, brain or spinal cord abnormalities, issues with eye development, and weak muscle tone. This condition occurs in approximately one in every 16,000 newborns.
Once the McHenry’s learned Baby Corbin had Trisomy 13, they searched around for the best hospital and care available. They decided to move from their home in North Carolina to Pennsylvania so both Kara and Corbin would be in the best hands possible - at the Children’s Hospital of Philadelphia (CHOP). Not only was Baby Corbin born breathing, he continued to do so on his own for the first hour of his life, and doctors were stunned.
Not only did Baby Corbin make it through the first hours, he has continued to be a strong, perseverant child for over fifty days. People from the community and across the globe have caught wind of Baby Corbin’s story and are sending support on a daily basis. According to Collins-Barker, individuals and families from countries including Ireland, Tokyo, Australia, Argentina, Canada and Japan are following the life and love of Baby Corbin.
A Facebook page has been set up titled “Team Corbin,” where more than 5,800 people are following Baby Corbin’s progress. A video showcasing his first month was recently posted to the page, and supporters can track his progress through the daily updates the page provides.
Team Corbin wristbands have been created, and are available for purchase for $4 each. The front of the wristband reads, “Team Corbin,” and the back reads, “You got this,” - a phrase that has been used throughout Baby Corbin’s journey. Tumblers are also available for purchase and are $15 each, or $10 if the buyer will pick up locally in New Berlin, South New Berlin, Sherburne or Norwich. Payments can be made for both the wristbands and tumblers via Paypal or credit card. More details about purchasing items to support Baby Corbin can be found on the Team Corbin Facebook page.
The McHenry’s have recently been informed Baby Corbin will be transferred to ECU Greenville in North Carolina, just a short drive from their new home. Shane, Baby Corbin’s father, is a Marine stationed at Cherry Point, N.C. Baby Corbin is stable enough now to be cared for at ECU Greenville until he is able to be discharged home.
“Corbin has been an inspiration,” said Collins-Barker. “A perfect little boy to have been chosen to help spread awareness.”
To learn more about Baby Corbin’s journey thus far and to continue to track his progress visit facebook.com/teambabycorbin.
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